Mission and History

Our Mission: The LAM Foundation urgently seeks an effective treatment, and ultimately a cure, for lymphangioleiomyomatosis (LAM) through advocacy and the funding of promising research. We are dedicated to serving the scientific, medical and patient communities by offering information, resources and a worldwide network of hope and support.

Our History: The LAM Foundation is the global leader in the fight against Lymphangioleiomyomatosis (LAM). The Foundation began in 1995 as a grass roots effort and has evolved into an organization that is described by the National Heart, Lung, and Blood Institute (NHLBI) as "a model for voluntary health agencies." Headquartered in Cincinnati, Ohio, the Foundation embodies all of the elements required to move LAM research from the laboratory to the clinic. The Foundation embraces women with LAM and their families, provides support and education, engages doctors and scientists, and raises funds for the study of LAM. With research as its central mission, the Foundation has elevated LAM from the ranks of rare and forgotten diseases to the forefront of pulmonary medicine. The LAM Foundation funded the first LAM research that resulted in the fundamental understanding of the genetic cause of LAM and the first-ever LAM treatment trial.

Core Values: The LAM Foundation is committed to serving the unique needs of women with LAM. In fulfilling our mission, we are guided by the following principles:

We value a caring, personal response to LAM patients and their loved ones.

We believe trust and credibility are earned by applying the highest standards of excellence.

We are responsible to the LAM community through strong leadership.

We value inclusiveness.

Hope is vital.

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